Module 1 – Newborn and infancy history
Feeding, behaviours, health problems and developmental behavioural in the newborn and infancy period. 1.1 Did the child reside with you in (ANGNewbornInfancyReside) No Code Question
Module 3 – Illnesses or Medical Problems
This module is completed when entering the patient registry and again annually to collect information on symptoms related to Angelman syndrome such as Reflux, constipation,
Module 5 – Behaviour and Development
This module is completed when entering the patient registry and updated annually for children under ten then every two years. This module collects information on
Module 7 – Medications, Interventions and Therapies
This module is completed when entering the patient registry and updated as required, the six month module prompts updates as well. Information is collected on
Module 8 – Sleep
General sleep questions sleep disturbance scale and seven day sleep diary. 8.1 General Sleeping (ANGBEHDEVSLEEPGENERAL) No Code Question Response 8.1.1a ANGBEHDEVGOODSLEEP2 On a scale of