Global Angelman Syndrome Registry
Faces of Angelman Syndrome

The Angelman Registry Project: Faces of Angelman Syndrome

The Angelman Registry is a tool to help medical professionals and researchers learn more about individuals with Angelman Syndrome (AS). The Registry will create new opportunities to gain insight and understanding about AS, providing an important tool for both facilitating research and enabling clinical trial sponsors to quickly identify suitable patients for each study.

The Registry is a global initiative that will collect data on individuals with AS through a series of online surveys in order to build the largest and most comprehensive global collection of information on Angelman Syndrome to date.

This is your chance to share your experiences with Angelman Syndrome and be a part of building knowledge for a brighter future for those with Angelman Syndrome.

Create a login and begin completing available questionnaire modules. There is no cost to participate.

If you have already registered, please log into the registry here.

Foundation for Angelman Syndrome Therapeutics
Mater Medical Research Institute
Office of eResearch

Copyright © Foundation for Angelman Syndrome Therapeutics Australia

The Angelman Syndrome Registry is based on the Trial Ready Registry Framework. Authorised by Prof. Matthew Bellgard, Director, eResearch.

Site updated: 16-05-2019