Module 4.5 – Communication
This module is completed when entering the patient registry and updated annually for children under ten then every two years. Information is collected on the
This module is completed when entering the patient registry and updated annually for children under ten then every two years. Information is collected on the
This module is completed when entering the patient registry and updated as required, the six month module prompts updates as well. Information is collected on
Updates to this module are made as changes are made, but are also prompted in the 6 month update. New Therapy (ANGTherapyNewMultisection) No Code Question
Updates to this module are made as changes are made, but are also prompted in the 6 month update. Therapy Stopped (ANGTherapyStopMultisection) No Code Question
For Professionals & Researchers
For Caregivers
The Global Angelman Syndrome Registry is a project designed for individuals diagnosed with Angelman syndrome and those working towards research and treatments.
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