Module 2 – History of diagnosis and results
Age of diagnosis, results and the pathway to diagnosis 2.1 History of Diagnosis (ANGHistoryOfDiagnosis) No Code Question Response 2.1.1a ANGAgeDiagnosis2 Age at diagnosis 2.1.3 ANGCurrentPatientAge
Module 4.5 – Communication
This module is completed when entering the patient registry and updated annually for children under ten then every two years. Information is collected on the
Module 5 – Behaviour and Development
This module is completed when entering the patient registry and updated annually for children under ten then every two years. This module collects information on
Module 7 – Medications, Interventions and Therapies
This module is completed when entering the patient registry and updated as required, the six month module prompts updates as well. Information is collected on