An interim check in with caregivers to see if there are any changes in seizure activity, medications or therapies.
Please enter your child/ adult’s current age, height and weight (6moAgehw)
No | Code | Question | Response |
A.0.1 | 6MoAge | Age in years and months | |
A.0.1 | 6MoHeight | Height in cm: | |
A.0.1 | 6MoWeight | Weight in kg: |
In the past 6 months has there been any changes in your child/ adult’s (6motreatment)
No | Code | Question | Response |
A.1.1 | 6MoEpilepsy | Epilepsy | 1 – Yes – please report changes in “My Child/ Adult’s Treatment – Change in seizure activity”; 2 – No (6MoEpilepsyScale) |
A.1.2 | 6MoSeizure | How have your child/ adult’s seizures changed (check all that apply) | 1 – Increased in frequency; 2 – Decreased in frequency; 3 – Change in seizure activity or symptoms; 4 – Other (please describe) (6MoSeizureScale) |
A.1.3 | 6MoSeizureOth | If other, please describe. | |
A.1.4 | 6MoMed | Medications | 1 – Yes – please report changes in “My Child/ Adult’s Treatment – Started/ Changed or Stopped Medication”; 2 – No (6MoMedScale) |
A.1.5 | 6MoMedChange | How has your child/ adult’s medication changed in the last 6 months? Check all that apply | 1 – Started a new medication; 2 – Stopped a medication; 3 – Changed the dosage or frequency of a current medication; 4 – Other (please describe) |
A.1.6 | 6MoMedChangeOth | If other, please describe. | |
A.1.7 | 6MoTherapy | Therapies | 1 – Yes – please report changes in “My Child/ Adult’s Treatment – Started/ Changed or Stopped Therapy”; 2 – No |
A.1.8 | 6MoTherChange | How has your child/ adult’s therapy service use changed in the last 6 months? Check all that apply | 1 – Started a new therapy; 2 – Stopped a therapy; 3 – Changed the duration or frequency of a current therapy; 4 – Other (please describe) |
A.1.9 | 6MoTherChangeOth | If other, please describe. |
In the past 6 months, has your child/ adult (6motestclinic)
No | Code | Question | Response |
A.2.1 | 6MoPath | Undergone any pathology or testing? | 1 – Yes – please report in “My Child/ Adult’s Treatment – Pathology and Diagnostics”; 2 – No |
A.2.1 | 6MoTrial | Started or stopped taking part in any clinical trials or studies? | 1 – Yes – please report in “My Child/ Adult’s Treatment – Clinical trials and studies”; 2 – No |
A.2.1 | 6MoClinic | Attended an Angelman clinic? |