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About Us:
Learn more about the Global Angelman Syndrome Registry and what we provide.
Vision, Mission & values:
Making it faster and easier to work together to understand and develop treatments of Angelman Syndrome.
Meet The Team:
Meet the staff behind the Global Angelman Syndrome Registry.
Partners
Partners:
Our partners promote the Registry in their region. Connect with an Angelman syndrome group near you!
Collaborations:
We collaborate with reputable organisations and researchers whose work will benefit people with Angelman syndrome.
FAST Search and Rescue:
A collaborative initiative to bring the global community together and identify every individual in the world living with Angelman syndrome.
Data Access
Data Access:
Find out what data we collect at the Global Angelman Syndrome Registry, and how to get access.
Modules:
All data is collected in modules, separated by topics. View the available modules here.
Request Data Access:
Are you a Clinician or Researcher? Apply for access to our data here.
Research
FAQs
Contact
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Home
About
About Us:
Learn more about the Global Angelman Syndrome Registry and what we provide.
Vision, Mission & values:
Making it faster and easier to work together to understand and develop treatments of Angelman Syndrome.
Meet The Team:
Meet the staff behind the Global Angelman Syndrome Registry.
Partners
Partners:
Our partners promote the Registry in their region. Connect with an Angelman syndrome group near you!
Collaborations:
We collaborate with reputable organisations and researchers whose work will benefit people with Angelman syndrome.
FAST Search and Rescue:
A collaborative initiative to bring the global community together and identify every individual in the world living with Angelman syndrome.
Data Access
Data Access:
Find out what data we collect at the Global Angelman Syndrome Registry, and how to get access.
Modules:
All data is collected in modules, separated by topics. View the available modules here.
Request Data Access:
Are you a Clinician or Researcher? Apply for access to our data here.
Research
FAQs
Contact
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The Angelman Network
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Foundation for Angelman Syndrome Therapeutics Australia
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About
About Us
Vision, Mission & values
Meet The Team
Partners
Partners
Collaborations
FAST Search and Rescue
Data Access
Data Access
Modules
Data Request Form
Research
What is Angelman Syndrome?
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