This module is completed when entering the patient registry and updated as required. Information is collected about clinics that the participant attends.
| No | Code | Question | Response |
| 11.3.1 | ClinicSite | Region where clinic(s) located | 1 – United States of America; 2 – Other North America; 3 – South America; 4 – Europe; 5 – Asia; 6 – Africa; 7 – Oceania |
| 11.3.2 | ClinicSiteUSA | Which clinic(s) in the United States of America? | 1 – Seattle Children’s Hospital (Seattle, Washington US); 2 – UCSF Benioff Children’s Hospital (San Francisco, California US); 3 – UCLA CART Center for Autism Research and Treatment (Los Angeles, California US); 4 – Rady Children’s Hospital San Diego (San Diego, California US) ; 5 – Intermountain Primary Children’s Medical Center (Salt Lake City, Utah US); 6 – Children’s Hospital Colorado (Aurora, Colorado US); 7 – Texas Children’s Hospital (Houston, Texas US); 8 – Mayo Clinic (Rochester, Minnesota US) ; 9 – Minnesota Epilepsy Group (St. Paul, Minnesota US); 10 – Rush University Medical Center (Chicago, Illinois US); 11 – Lurie Children’s Hospital Chicago (Chicago, Illinois US); 12 – Monroe Carell Jr. Children’s Hospital (Nashville, Tennessee US); 13 – Geisinger Autism & Developmental Medicine Institute (Lewisburg, Pennsylvania US); 14 – NYU Langone Medical Center (New York, New York US); 15 – Weill Cornell Medical College of New York (New York, New York US); 16 – Massachusetts General Hospital (Boston, Massachusetts US); 17 – UNC Carolina Institute for Developmental Disabilities (Carrboro, North Carolina US); 18 – Miami Children’s Hospital (Miami, Florida US); 19 – Other |
| 11.3.3 | WhatOtherClinicUSA | Name and location | |
| 11.3.23 | ClinicSiteNorthAmerica | Which clinic(s) in other North American countries? | 1 – Children’s Hospital of Eastern Ontario (Ottowa, Canada); 2 – BC Children’s Hospital; 3 Other |
| 11.3.24 | WhatOtherClinicNorthAmerica | Name and location | |
| 11.3.28 | ClinicSiteSouthAmerica | Which clinic(s) in South America? | 1 – Brazil Angelman Clinic; 2 – Argentina Angelman Syndrome Clinic; 3 – Other |
| 11.3.29 | WhatOtherClinicSouthAmerica | Name and location | |
| 11.3.33 | ClinicSiteEurope | Which clinic(s) in Europe? | 1 – Erasmus Angelman Syndrome Center, Rotterdam, The Netherlands; 2 – St Mary’s Hospital, Manchester, UK; 3 – Edmond and Lily Safra Children’s Hospital, Sheba Tel Hashomer (Tel Aviv, Israel); 4 – Other |
| 11.3.34 | WhatOtherClinicEurope | Name and location | |
| 11.3.38 | ClinicSiteAsia | Which clinic(s) in Asia? | 1 – Edmond and Lily Safra Children’s Hospital, Sheba Tel Hashomer (Tel Aviv, Israel); 2 – Other |
| 11.3.39 | WhatOtherClinicAsia | Name and location | |
| 11.3.41 | ClinicSiteAfrica | Which clinic(s) in Africa? | 1 – Edmond and Lily Safra Children’s Hospital, Sheba Tel Hashomer (Tel Aviv, Israel) ; 2 – Other |
| 11.3.42 | WhatOtherClinicAfrica | Name and location | |
| 11.3.45 | ClinicSiteOceania | Which clinic(s) in Oceania? | 1 – Melbourne Royal Children’s Hospital Clinic; 2 – Development Assessment Service, St George Hospital, Kogarah, NSW; 3 – Other |
| 11.3.46 | WhatOtherClinicOceania | Name and location |
